Saturday, March 8, 2014

A little more of what has been going on & some good news in my journey

 Well I'm sorry I haven't posted in a while. There hasn't been much to report. I went for my consultation with the surgeon last month. Which didn't go as I thought, he sent in another endocrinologist and together they order even more test. I can't say I was very happy about that, but I finally have them done, except for the big one, the scary one the IPSS test. In the past month I got more blood work, another 24-hour urine, bone density test & sleep study last week. Now I'm waiting to hear from the sleep study, but the guy working said,he didn't see anything really abnormal other than I just have trouble going to sleep & staying asleep. Just what I thought it was going to show, another wonderful gift of that little nasty tumor sitting in my brain, all that cortisol it has pumping through my body, is like being on high doses of steroids, so sleep is very, very difficult. I've told my family after my surgery when I pray I can finally sleep, not to wake me up, just check to make sure I'm still breathing & let me sleep however long I possibly can, I can not remember the last time I actually had a good nights sleep. Now if my doctors can get all these test together, schedule the big, scary one, hopefully we will move on to surgery soon. I guarantee if it was them or someone in there close family they would try to hurry this along a little more. Thankfully my local endo doctore was as aggravated as I am, that they ordered more test, since he had already done plenty, we know what is wrong. They have a pretty little mri picture of that nasty little tumor. So we both agree, lets get this show on the road & pray they get it all & I can get on the road to recovery (which takes a while after surgery) So they need to speed things along.

I am happy that I have a little good news to share.
I finally found some insurance and got approved for it.. Unfortunately, it cost over $300/month, and I have several thousands & thousands that have already & are continuing to  add up already in all the tests, doctor visits, & meds before the insurance. But I'm very thankful, to the Lord, that now as long as it is an "approved" Doctor, hospital, procedure & etc.. That I have insurance to help. I will have a copay for approved Dr visits of $30. Then any labs, procedures, hospital stays & etc. "approved, in plan" will be paid at 80%, then we have any copays & the other 20%. Which will help with the surgery a lot! We will still be out thousands & thousands, but no where close to what we were facing. So what a blessing! That is a huge prayer answered.. And helps alleviate some of the stress.

Thank you all for the continued prayers! Praying I get the "official" results of my sleep study next week & praying then after my local endo calls Jackson that things will start to move faster. I'll post when I know something

Please continue to pray, I spend my days at home, holding down the recliner. Just not able to really do much of anything. Only getting out to go to dr visits & etc. Which I joke & say I wish they could just come to me like the old days. Getting ready & stuff, does me in (that is so sad to say, but it is the truth..) There is so much we take for granted,  that are huge when you are unable to do it or unable to do it without a lot of PAIN, nearly hitting the floor trying, or not being able to do things without help. I know it takes a toll on my family, since they have to help me with most everything. But I know God will help us through all of this. Thank the Lord for my husband (who is amazing, I might add), my precious daughter (which I thank the Lord for many, many times a day. This child gets me through each & every day. She is my sunshine, she brightens everyday of my life. I can always count on her to keep me from getting down. ), mom (who is my rock & always has been) & ALL my family. I love them all dearly, instead of trying to name everyone! Oh but I have to say, my little 3 yr old niece, who has to come check on her "Nay-Nay" ever chance she can, to hug me & tell me, "I love you Nay-Nay!", which of course is a heart melter & always helps lift my spirits.. I am truly BLESSED! I can't imagine what I would do without my family

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